The Life of a Sickle Cell Warrior.
In carrying out research on the knowledge of sickle cell disorder and genotype importance; about 70 percent knew nothing about the sickle cell disorder and the few that knew about it referred to it as ‘Abiku’, they also did not see the need to know their genotype while in Egbokodo...
Few weeks back, an information got to us about the young man, we have been taking care of for some time now, that he was beaten by a man in his 40s for no just cause. On getting the sour news we had to go to the community to make...
By Temitope Popoola Crew members of Legit.ng had an emotional time when they met Aderinsola Odebunmi, a 35-year-old sickle cell patient whose health is failing day by day. The frail looking lady who seemed like she had been through a lot since she was born poured out her heart to...
Nigeria is set to host the first continent-wide conference on sickle cell disease, an ailment which has been described as one of the world’s most common genetic diseases, affecting an increasing number of people but is still relatively unknown to the wider public. By Sponsored Press The maiden African Congress...
Source: Global Blood Therapeutics, Inc. SOUTH SAN FRANCISCO, Calif., July 10, 2019 (GLOBE NEWSWIRE) — Global Blood Therapeutics, Inc. (GBT) (NASDAQ: GBT), in partnership with sickle cell community-based organizations (CBOs), today announced the launch of Sickle Cell Speaks, a national campaign focused on breaking down stigmas associated with sickle cell disease...
Mary Chapman BY MARY CHAPMAN IN NEWS. The Sickle Cell Disease Association of Illinois (SCDAI) announced plans to hold its 45th Annual 8K Walk/Jog/Bike-A-Thon on July 20, continuing the group’s longstanding efforts to raise funds and disease awareness. Rain or shine, the event will take place starting at 8 a.m. along the shores of...
BY PATRICIA INACIO, PHD IN NEWS. Treatment with hydroxyurea since early infancy, starting at the age of one, is effective and safe at preventing sickle cell disease (SCD) complications, a follow-up study has found. The study “Prospective longitudinal follow-up of children with sickle cell disease treated with hydroxyurea since infancy” was published in journal Pediatric Blood and...
By Kenneth Orusi, The Nigerian Voice, Asaba Wife of the Delta state governor, Dame Edith Okowa, has called for more attention to be given to scientific research in the treatment of Sickle Cell. She made the call recently at the 2019 World Sickle Cell Day Celebration held at the Central Hospital...
By Lance JonesPublished June 19, 2019 At two years of age, my mother was worried because I cried almost constantly. She noticed that my finger looked broken, which we would soon discover was a result of bone deterioration. What she was about to discover after rushing me to the hospital...
By Dr. Kevin Williams, Chief Medical Officer for Rare Disease at Pfizer Published June 27, 2019 In this article, I’d like to introduce you to TaLana Hughes, a mother of three who is also the executive director of the Sickle Cell Disease Association of Illinois (SCDAI). TaLana has one child...
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