The Life of a Sickler.
My name is Odeka Ese Ikpe; favoured Hbss warrior. I remember growing up as the youngest in a polygamous home, the 23rd child of my father. I was told we were 24 children, and my father had many wives but my mother was the youngest. My parents separated when I...
Let make welcome our special guest, a strong warrior Compiled By Imo Hannah Published By Audrey Mukoro From Uganda Hello everyone It’s Nazziwa Tinah from Uganda Am a 27yr old with Sicklecell and HIV Welcome Thanks everyone I know a lot of you have question to ask me please don’t...
Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...
I am Odetayo Peter, a 28 year old sickle cell warrior, a graduate of Mechanical Engineering. I went to a military primary and secondary school, I didn’t grow up knowing I was a warrior though my mum and sister were warriors, I grew up thinking I was AS and everyone...
TOPIC: PICA IN SCD WARRIORS GUEST SPEAKER: DR UGONNA AJOKU on ASCF WhatsApp group on 15 April 2020. Hello Everyone. I’m sorry I had to reschedule because I was caught up in something but happy to be here and to meet you fine people. So our topic today is PICA...
BY MARY SHANIQUA I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the COVID-19 outbreak. In my...
BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of SCD patients and their families during the pandemic. Applications are being accepted through...
by Hawken Mill For most of his 39 years, Charles Hough lived with extreme pain caused by sickle cell disease, which dramatically reduced blood flow throughout his body. But thanks to the gene therapy he received in 2017, Hough is now symptom-free. “I feel like I have a new chance...
BY MARY SHANIQUA If someone asked you to tell your life story, what would you say? We all have a story. Some might begin by describing their life from the point of meeting their partner, or from high school, or perhaps following the birth of their child. We remember and retell...
Credited to The Elites + Details of Her Last Moments Alhaja Ashata Onikoyi- Laguda, the world’s oldest person living with sickle cell, is dead. She passed yesterday, Saturday, in Lagos in her sleep. She was aged 94. A source from the Onikoyi royal family confirmed the death of the legendary...
Recent Comments