Category: Warriors

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REJECTION WITH AUNTY TOLA DEHINDE

Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR  BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...

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Odewale Peter’s Addiction Tale

I am Odetayo Peter, a 28 year old sickle cell warrior, a graduate of Mechanical Engineering. I went to a military primary and secondary school, I didn’t grow up knowing I was a warrior though my mum and sister were warriors, I grew up thinking I was AS and everyone...

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PICA with THEDOCPRENEUR

TOPIC: PICA IN SCD WARRIORS GUEST SPEAKER: DR UGONNA AJOKU on ASCF WhatsApp group on 15 April 2020.  Hello Everyone. I’m sorry I had to reschedule because I was caught up in something but happy to be here and to meet you fine people. So our topic today is PICA...

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During Lockdown, It’s OK to Rest, Too

BY MARY SHANIQUA I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the COVID-19 outbreak. In my...

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GBT Donating $250,000 to Nonprofits Aiding Sickle Cell Community

BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of  SCD patients and their families during the pandemic. Applications are being accepted through...

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Sickle Cell Patient Describes ‘Rebirth’ After Gene Therapy

by Hawken Mill For most of his 39 years, Charles Hough lived with extreme pain caused by sickle cell disease, which dramatically reduced blood flow throughout his body. But thanks to the gene therapy he received in 2017, Hough is now symptom-free. “I feel like I have a new chance...

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BREAKING: World’s Oldest Person Living With Sickle Cell Disorder, Asiata Onikoyi-Laguda, Dies At 94

Credited to The Elites + Details of Her Last Moments Alhaja Ashata Onikoyi- Laguda, the world’s oldest person living with sickle cell, is dead. She passed yesterday, Saturday, in Lagos in her sleep. She was aged 94.  A source from the Onikoyi royal family confirmed the death of the legendary...