Category: General

SPLENIC SEQUESTRATION 0

SPLENIC SEQUESTRATION

Sickle cell disease is a lifelong condition, but you can take steps to stay healthy and lower the chances of having a crisis or complication. Sickle cell disease affects the spleen, which helps with the immune system. As a result, those with SCD have weakened immune systems and are more...

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Living with Sickle Cell and Eating Healthy

Alright, before I head into the main topic I feel there are some  definitions should be  know Nutrition: Nourishment or energy that is obtained from food consumed or the process of consuming the proper amount of nourishment and energy. Diet: Diet is the sum of food consumed by a person...

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Fatigue: why am I always exhausted?

Hi there! My name is Audrey Mukoro, a 36-year- old sickle cell warrior, a mom, genetic counselor and founder and director of Audrey Sickle Cell Foundation and I am a proud warrior. Its been a minute…yeah…. I have being busy with life, my health, my daughter and the organisation. My...

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What Not to Say to Someone With Sickle Cell

AUGUST 7, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Have you ever informed somebody of your diagnosis and found their response to be a little annoying? I often have. I try to extend grace in such situations because usually people don’t know what to say...

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Oxbryta Can Ease or Fully Heal Leg Ulcers, Trial Analysis Shows

FEBRUARY 11, 2021 BY JOANA CARVALHO IN NEWS. Oxbryta (voxelotor) can help ease, or fully heal, painful leg ulcers in people with sickle cell disease (SCD), according to a post-hoc analysis of a Phase 3 trial. These promising findings support the launch of future trials investigating the potential benefits of Oxbryta — already conditionally approved...

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Here Are Ways to Help Friends with Sickle Cell Disease

JUNE 19, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it...

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Here Are Ways to Help Friends with Sickle Cell Disease

BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it appropriate to discuss...

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REJECTION WITH AUNTY TOLA DEHINDE

Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR  BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...