The Life of a Sickler.
Alright, before I head into the main topic I feel there are some definitions should be know Nutrition: Nourishment or energy that is obtained from food consumed or the process of consuming the proper amount of nourishment and energy. Diet: Diet is the sum of food consumed by a person...
Hi there! My name is Audrey Mukoro, a 36-year- old sickle cell warrior, a mom, genetic counselor and founder and director of Audrey Sickle Cell Foundation and I am a proud warrior. Its been a minute…yeah…. I have being busy with life, my health, my daughter and the organisation. My...
AUGUST 7, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Have you ever informed somebody of your diagnosis and found their response to be a little annoying? I often have. I try to extend grace in such situations because usually people don’t know what to say...
FEBRUARY 11, 2021 BY JOANA CARVALHO IN NEWS. Oxbryta (voxelotor) can help ease, or fully heal, painful leg ulcers in people with sickle cell disease (SCD), according to a post-hoc analysis of a Phase 3 trial. These promising findings support the launch of future trials investigating the potential benefits of Oxbryta — already conditionally approved...
JUNE 19, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it...
My name is Odeka Ese Ikpe; favoured Hbss warrior. I remember growing up as the youngest in a polygamous home, the 23rd child of my father. I was told we were 24 children, and my father had many wives but my mother was the youngest. My parents separated when I...
Let make welcome our special guest, a strong warrior Compiled By Imo Hannah Published By Audrey Mukoro From Uganda Hello everyone It’s Nazziwa Tinah from Uganda Am a 27yr old with Sicklecell and HIV Welcome Thanks everyone I know a lot of you have question to ask me please don’t...
BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it appropriate to discuss...
Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...
BY MARY CHAPMAN While it will be entirely virtual this year, the 7th Annual Walk With the Stars & Move-A-Thon is taking place July 11 to raise awareness and money to fight sickle cell disease (SCD). Presented by the Sickle Cell Disease Association of America (SCDAA), the signature 5K national event is aimed at finding better treatments and a cure...
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