Category: General

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During Lockdown, It’s OK to Rest, Too

BY MARY SHANIQUA I was hospitalized on March 3 with a sickle cell crisis and discharged 12 days later. I then spent a week recovering at home. Under normal circumstances, I would have returned to “ordinary life” on March 23. But during that period, ordinary life changed significantly due to the COVID-19 outbreak. In my...

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GBT Donating $250,000 to Nonprofits Aiding Sickle Cell Community

BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of  SCD patients and their families during the pandemic. Applications are being accepted through...

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Sickle Cell Patient Describes ‘Rebirth’ After Gene Therapy

by Hawken Mill For most of his 39 years, Charles Hough lived with extreme pain caused by sickle cell disease, which dramatically reduced blood flow throughout his body. But thanks to the gene therapy he received in 2017, Hough is now symptom-free. “I feel like I have a new chance...

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Lack of Vitamin D in SCD Children Linked to Worse Hospital Outcomes in Study

BY MARISA WEXLER, MS Children and adolescents with sickle cell disease (SCD) who lack vitamin D are hospitalized more often due to pain crises, have longer hospital stays, and make more frequent visits to the emergency room, a new study has found. The study, “The association between vitamin D deficiency and hospitalization outcomes in pediatric...

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High Fever and Poor Blood Oxygen Levels Linked to Acute Chest Syndrome in SCD, Study Says

BY IQRA MUMAL, MSC IN NEWS. Acute chest syndrome, a serious complication of sickle cell disease that can accompany a vaso-occlusive crisis, is more likely in SCD patients who run high fevers, and have low blood oxygen levels and poor spleen function during such crises, a study of hospital records suggests. Other possible predictors of...

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BREAKING: World’s Oldest Person Living With Sickle Cell Disorder, Asiata Onikoyi-Laguda, Dies At 94

Credited to The Elites + Details of Her Last Moments Alhaja Ashata Onikoyi- Laguda, the world’s oldest person living with sickle cell, is dead. She passed yesterday, Saturday, in Lagos in her sleep. She was aged 94.  A source from the Onikoyi royal family confirmed the death of the legendary...

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SICKLE CELL DISORDER

Sickle cell disease is an inherited blood disorder. It is marked by flawed hemoglobin. That’s the protein in red blood cells that carries oxygen to the tissues of the body. So, sickle cell disease interferes with the delivery of oxygen to the tissues. Red blood cells with normal hemoglobin are...

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Oral Arginine therapy appears safe, effective for sickle cell disease pain management

ORLANDO — Oral supplementation with arginine resulted in faster resolution of pain associated with vaso-occlusive episodes among younger patients with sickle cell disease, according to the results of a randomized phase 2 trial presented at ASH Annual Meeting and Exposition. The study also showed that patients who had previous arginine...