Category: Home

0

Oxbryta Can Ease or Fully Heal Leg Ulcers, Trial Analysis Shows

FEBRUARY 11, 2021 BY JOANA CARVALHO IN NEWS. Oxbryta (voxelotor) can help ease, or fully heal, painful leg ulcers in people with sickle cell disease (SCD), according to a post-hoc analysis of a Phase 3 trial. These promising findings support the launch of future trials investigating the potential benefits of Oxbryta — already conditionally approved...

0

Here Are Ways to Help Friends with Sickle Cell Disease

JUNE 19, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it...

0

Here Are Ways to Help Friends with Sickle Cell Disease

BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it appropriate to discuss...

0

REJECTION WITH AUNTY TOLA DEHINDE

Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR  BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...

0

RETINOPATHY WITH DR. ADEMOLA ADEWOYIN

Sickle Cell Retinopathy It is the most important eye complication in sickle cell disease (SCD). It’s important to talk about it because it can lead to partial or complete loss of vision Mind you, there are other eye disease that can affect someone living with SCD that are not directly...

0

Odewale Peter’s Addiction Tale

I am Odetayo Peter, a 28 year old sickle cell warrior, a graduate of Mechanical Engineering. I went to a military primary and secondary school, I didn’t grow up knowing I was a warrior though my mum and sister were warriors, I grew up thinking I was AS and everyone...

0

PICA with THEDOCPRENEUR

TOPIC: PICA IN SCD WARRIORS GUEST SPEAKER: DR UGONNA AJOKU on ASCF WhatsApp group on 15 April 2020.  Hello Everyone. I’m sorry I had to reschedule because I was caught up in something but happy to be here and to meet you fine people. So our topic today is PICA...

0

GBT Donating $250,000 to Nonprofits Aiding Sickle Cell Community

BY PATRICIA INACIO, PHD Global Blood Therapeutics (GBT) is giving $250,000 to support the U.S. sickle cell disease (SCD) community during the COVID-19 pandemic. Its newly created GBT Community Fund will award a total of $150,000 in grants to non-profit organizations supporting the needs of  SCD patients and their families during the pandemic. Applications are being accepted through...