How it Started.
My name is Audrey Mukoro, a single mum and I am living with sickle cell anemia disease. We don’t talk about Sickle cell, as we do about aids or cancer, but I’ve lived with this disease for thirty years. I’ve been discriminated, abandoned and living in denial, but not anymore. I am coming out to share my story, to inspire and to help and bring hope and this is my diary.
Consider for a moment, a boisterous child, full of life, loved by all. This child started to grow thin and began to develop a protruding stomach that made breathing difficult. Tubes were connected to her body to extract greenish fluid.
The scene is already becoming yuck, right? That was me some thirty – years ago. My parents took me to the hospital, where it was diagnosed that I had a swollen spleen and I ended up spending a week in the hospital.
Oxygen was given to help me breathe and a tube connected to my stomach to extract some very greenish substance. Worried my parents were. They were heartbroken when the doctor broke the news, that I was a sickle.
My Dad was broken, my Mum was in tears, not much information and professional services existed back then and so, I was already marked for death. Yes, Warriors are always seen as “people that will soon die” so imagine, how the life of a three-year-old girl changed.
This was my first crisis, and I’ve not known life without a crisis. That was 30 years ago, I am still here, with a daughter free from the grasp of this dreaded disease. It has not been easy, but I am stronger than you think, I have outlived predictions and I am coming out to share my story, help and give hope. Hope for tomorrow, hope to overcome the pain and discrimination, ask you to stop wondering and join me to begin doing.
See you next week.
With Love Audrey.
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