0

What Not to Say to Someone With Sickle Cell

AUGUST 7, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Have you ever informed somebody of your diagnosis and found their response to be a little annoying? I often have. I try to extend grace in such situations because usually people don’t know what to say...

0

Oxbryta Can Ease or Fully Heal Leg Ulcers, Trial Analysis Shows

FEBRUARY 11, 2021 BY JOANA CARVALHO IN NEWS. Oxbryta (voxelotor) can help ease, or fully heal, painful leg ulcers in people with sickle cell disease (SCD), according to a post-hoc analysis of a Phase 3 trial. These promising findings support the launch of future trials investigating the potential benefits of Oxbryta — already conditionally approved...

0

Here Are Ways to Help Friends with Sickle Cell Disease

JUNE 19, 2020 BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it...

0

Sickle Cell and Denial

My name is Audrey Mukoro, a 35-year- old sickle cell warrior, a single mom, genetic counsellor and founder and executive director of Audrey Sickle Cell Foundation. I am a proud warrior. Years ago, it wouldn’t have been easy to admit that I am living with sickle cell disorder; societal pressures...

0

Here Are Ways to Help Friends with Sickle Cell Disease

BY MARY SHANIQUA IN COLUMNS, SHANIQUA’S SICKLE CHRONICLES – A COLUMN BY MARY SHANIQUA. Whenever I meet new people and tell them I have sickle cell disease (and explain what it is), they often ask how they can help. June 19 is World Sickle Cell Awareness Day, so I thought it appropriate to discuss...

0

REJECTION WITH AUNTY TOLA DEHINDE

Compiled By Imo Hannah Published By Audrey Mukoro REJECTION AS A WARRIOR  BY TOLA DEHINDE ON ASCF WHATSAPP GROUP 7/6/2020 Who’s ready????? If you are online pls indicate with an emoji Good evening everyone Our guest is here with us now, she is our mama, an advocate, a columnist and...

0

7th Annual Walk With the Stars & Move-A-Thon Kicks Off July 11 to Fight SCD

BY MARY CHAPMAN While it will be entirely virtual this year, the 7th Annual Walk With the Stars & Move-A-Thon is taking place July 11 to raise awareness and money to fight sickle cell disease (SCD). Presented by the Sickle Cell Disease Association of America (SCDAA), the signature 5K national event is aimed at finding better treatments and a cure...

0

RETINOPATHY WITH DR. ADEMOLA ADEWOYIN

Sickle Cell Retinopathy It is the most important eye complication in sickle cell disease (SCD). It’s important to talk about it because it can lead to partial or complete loss of vision Mind you, there are other eye disease that can affect someone living with SCD that are not directly...